NO NEWS IS GOOD NEWS!!!!!!!!!!!!!!!!!!!!!!

Well nothing much to say except im still in pain :-(
The Mirena has settled down,well  I mean the bleeding has settled but now everytime i eat i get really bad cramps and have to run to the loo.Its mad though cause my bowels only opened once maybe twice a week if i was lucky now i can go up to 6 times a day.

I have decided to go and get a 2nd opinion.I have gone back to my Gynae as an emergency on numerous occasions but he still is unable to do anything for me except advise me to keep taken my painkillers.Not 1 question can he answer for me and he wont remove the Mirena for me,just going around in circles.I have no energy and trying to hold down a full time job is a nightmare.

I had to go and see the Company Doc again and explained everything to him,he said that it sounds like they are bullying me and that he will send in a letter to get them of my case for awhile.

So here is to 2011,doesnt look any brighter than 2010 but fingers crossed i might get some answers from another Gynae

REALLY NEEDS MORE SLEEP!!!!!!!!!!!!!!!!!!!

Went back to work Yesterday,need to get back to some normality after the week that I have had,so I have stopped taking the Morphin and started back on my normal Zydol and Difene.Pain is still der but its coming and going so with a bit of luck de cyst has started to shrink a bit more just hope the bleeding stays away.

I was exhausted last night after being in work,came home had a bath and went to bed,missing my weekends going out but friends have dropped by to keep me company.I havent been sleeping well at all,I think Endo doesnt like it when I try and sleep cos thats when the pain really starts to kick in.I get about 3-4 hours sleep and spend the rest of the time walking the floors.Thank god for my dog,he keeps me sane as he stays awake with me and listens to me moaning lol.

Im hoping that Il get more sleep as the pain settles down a bit,really need my sleep as I am so use to getting 8-9 hours sleep,maybe when I go back I might ask for something to help me sleep

TEARS,PAIN,FRUSTRATION ...........................ENDO'S BACK!!!!!!!!!!!!!!!

Ive been so upset that I havent even been bothered with my blog,anyways here goes.

Monday 2 weeks ago I had my out patients appointment,I explained to the Gynae that I am still in pain and still bleeding with a day break here and there,so she decided to do a scan and there is was a 10cm Endometrial Cyst and then the words that I wasnt expecting to hear ''YOUR ENDO IS BACK JUST 3 MONTHS AFTER SURGERY,IT DOESNT LOOK LIKE THE MIRENA IS WORKING BUT I WOULD RECOMMEND YOU LEAVE IT IN FOR ANOTHER 3 MONTHS''The Gynae then went to talk to the Consultant to see what he wanted to do about the cyst.
I lay there on the chair thinking to myself,what is the point in Surgery,only 12 weeks ago I had surgery and I never really got any relief and to make matters worse I have a cyst,like WTF,I must have been a really bad person in my past life.In walks the Gynae with the Consultant and he explains that I have Stage 5 Endo and that it was so bad that he couldnt get everything (this is not what I wnated to hear''.They advised that I go home and rest and come back in 6 weeks but if the pain gets bad to go to A&E.

Wednesday my pain started to get worse,especially in my right side but I knew I couldn't go sick from work again so I fought right through till Friday,however,Friday night I was up walking the floors,by now my painkillers weren't even working.Saturday Morning I went to A&E with my Mam,waited 8 hours to see a Gynae who never examined me and told me  that I was getting Depressed which comes with the Disease,he also asked if I would like a booklet on Endo.After 14 years of having this Disease I dont need any booklet,anyway he prescribed me Morphine and sent me Home.

Last Monday I went back to the Out Patient Clinic and demanded that I see my Consultant or any Gynae (except the one that I saw on Sat) as I was getting no better.They did another scan and the cyst did shrink by 2cm,however they reckon that the Endo has flared up,Im now back on Provera and since Monday I have stopped bleeding.I am still in pain and will need anoother surgery,back with the Gynae in 6 weeks,thats if I dont get worse.

I am now back to square 1 again,there is just no beating this

SHOULD REALLY DO AN UPDATE,EXCEPT NOT MUCH HAS CHANGED!!!!!!!

I have been really pissed of that I just couldnt be arsed doing anythin,including updating my Blog.Nothing much has changed,still in alot of pain and STILL have NOT seen my Gynae.
The Mirena is in 3 months and in sooooo proud of myself for persevering but I really dont think its working,its causing more pain than anything else!!!!!!!!!

I am now starting to get pain in my right hip,this is something new and have no idea if its related to Endo although the pain does feel like Endo pain.Ive started feeling down,I dont normally get depressed but lately I just feel like crying for no reason,reckon that fot to do with the Mirena.

PLEASE PLEASE PAIN GO AWAY,JUST GIVE ME 1 NIGHTS PEACE!!!!!!!!!!!!!!

when is this MIRENA ever goin 2 settle down?????????????

So i did eventually get my period 9 days ago,and still have it :(
I dont know wot to do with al this cramping,its really bad,especially Today.I found it very hard
to sit still in work and I am finding it harder to pretend that im ok and trying to smile throuh everything.
I dont even know if its normal to be still suffering like this................... and there is no point ringing my GP as he will refer me back to the Gynae who i am unable to get an emergency appointment with so i might aswell stick it out for the next couple of weeks after all ive stuck it out this long with no after care from my surgery and no support from my Gynae.

The only good thing that I have noticed is thankfully i dont have many mood swings

PAIN WITHOUT PERIOD

So I should of started my period by now but it hasnt arrived so maybe the Mirena is working after all????????
I am still getting pain but its not Endo pain,its what I call Mirena pain.It doesnt seem to like me very much lately and really hates when I try to go for a walk.
Its 1.30am and I should be sleeping but instead the Mirena has decided to act up again and Im goin mad with cramps.Anyway I'm thinking that this all could be normal because I just had surgey 6 weeks ago and alot of work was done so my ovaries and womb are just settling down and so the Mirena just needs to settle down too....................mad I know but please agree with me for my own sanity.

Im back at the hosp in September so they will check the Mirena out then.
THIS WILL WORK FOR ME

On the bright side,my belly button is now healing well,ive no period and do not have Endo pain,only another 6 weeks left before everything including the Mirena settles down

BAD MIRENA WEEKEND!!!!!!!!!!!!!!!!!!

If its not one thing its another,nothing ever goes smootly when it comes to Endo of treatment for Endo.
My belly button seems to be getting better,however,since yesterday I have been getting such bad cramps
from the Mirena,like the cramps are so bad that I have to go to bed with hot water bottle and pain killers.

Im stuck in bed for the long weekend all down to Endo again,yet again you won Endo!!!!!!!!!!!!
Sometimes its like fighting a loosing battle and I hate letting this horrible disease win.Cant plan anything cos
you dont know if you will be in pain or what kinda form you will be in.

The Mirena is in 6 weeks now,back with the Gynae in Sep so il have to get thrm to check it to make sure
its still in the right place.
Have 2 weeks hols at the end of this Month,so cant wait im exhausted